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"Mauro Baschirotto" Rare Diseases Association

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_____________________________________________ Umbria Branch


The Umbria Branch of the Association for Rare Diseases "Mauro Baschirotto" carries out its activity at national and international level. Hence the need to rethink its organizational structure, taking into account the growing needs related to new collaboration projects with health facilities in other regional contexts.

Of primary importance are the projects recently started with the Umbra Health facilities (specifically with the Santa Maria della Misericordia Hospital in Perugia, in particular with the C.R.R. of medical genetics), which will allow a better approach to the numerous cases of Rare Diseases in the central Italian area.

The Umbria Branch, which is based in Terni, thanks to the free service of the structure, gives the possibility to be closer to rare patients in Central Italy.

The purposes are those foreseen by the statute in terms of assistance, information and training of Rare Diseases and support for Scientific Research. In particular, relations with patients, with their families and with health facilities are taken care of, as well as developing awareness activities on the issue of Rare Diseases in the area.


WE COLLECT DONATIONS TO HELP PATIENTS WITH RARE DISEASES
The donations, which are deductibles, can be done throug bank transfer / postal money order:

  • c/c Postale IT 10 P 07601 11800 000017000365
  • c/c Unicredit Terni IT 19 F 02008 14411 000104535697






 

 
Associazione Malattie Rare Associazione Malattie Rare "Mauro Baschirotto"
Costozza  Vicenza - Italy 
Tel. Fax. +39 0444 555557 http://www.baschirotto.com
B.I.R.D. Europe Foundation onlus
Via B.Bizio, 1 - 36023 Costozza Vicenza - Italy
Tel. - Fax ++39 0444 555557 - 555034
http://www.birdfoundation.org

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